Coping With Laryngomalacia, Inc. was founded in July of 2010.
CWL is an ALL volunteer New Jersey, USA based 501 (c) 3 nonprofit organization.
It's mission is to provide support,strength and education for parents, families and patients coping with LM, TM & BM.
All donations are tax exempted by law.
CWL is an ALL volunteer New Jersey, USA based 501 (c) 3 nonprofit organization.
It's mission is to provide support,strength and education for parents, families and patients coping with LM, TM & BM.
All donations are tax exempted by law.
Our Board of Trustees:
Stephanie Hueston, Founder & President
Daniel Paden, Treasurer
Edith Hueston, Secretary Stephanie Hueston, Founder & President
Daniel Paden, Treasurer
Christina Amaro, Executive Assistant
A note from the founder:
How it all started...
On January 18, 2010 my second daughter, Seraphina was born. She was born blue/purple and was not breathing. After vigorous stimulation she began to breathe and I was told she was a "normal--congested-- newborn." At five weeks old she was diagnosed with severe laryngomalacia and needed to have a supraglottoplasty performed at four months old because her larynx was collapsing causing a full airway obstruction. In addition to laryngomalacia she has obstructive and central apnea, left ventricular hypertrophy of the heart, GERD, a narrow trachea (TM), acrocyanosis along with front left lobe epilepsy.
On January 18, 2010 my second daughter, Seraphina was born. She was born blue/purple and was not breathing. After vigorous stimulation she began to breathe and I was told she was a "normal--congested-- newborn." At five weeks old she was diagnosed with severe laryngomalacia and needed to have a supraglottoplasty performed at four months old because her larynx was collapsing causing a full airway obstruction. In addition to laryngomalacia she has obstructive and central apnea, left ventricular hypertrophy of the heart, GERD, a narrow trachea (TM), acrocyanosis along with front left lobe epilepsy.
I am the founder and President of Coping With Laryngomalacia, Inc. and received my certification in nonprofit management in January of 2011.
...may you find support and strength while you are coping with LM...-Steph
Helpful links:
Testimonials
Who we have helped-Blankets for LM Babies
Who we have helped- Nap Nanny Donation Program
Disclaimer
Copyright ©. Coping With Laryngomalacia, Inc. All rights reserved.
