Programs

Programs and support we offer:

• Support & Strength: through our  Continued Support Blog and the Private Support Group on Facebook.
  please note, medical documentation and approval from CWL President is needed prior to being added to the support group.
  

• Support Group Meetings:  located in Monmouth County, New Jersey. If you would like to attend a Support Group Meeting please contact our Executive Assistant: Christine at ChrissyGates2@aol.com.
   
• Online Support Group Meetings: Once a month invite only online support group meetings, provide support and strength for parents from all over the world who are coping with LM.

•  Operation Mommy Time!: is a weekly program where CWL encourages LM mothers to take a well deserved and have some "me time." Each Monday there is a group discussion on the Facebook support group on what each mother did, who watched the baby and it felt to focus on herself for a few minutes.

• Blankets for LM Babies: is a blanket donation program in which CWL donates  handmade blankets to  babies recovering from LM surgery or other LM related procedures.
• Socks for Surgery: created by a LM Supermama, this program gives approved LM babies who are going into surgery screen printed socks with cute sayings on them such as, "Fixin' my floppy larynx."
  please note, this program is only for applicants one year old and under.
  
  

• Nap Nanny Donation Program: is a program where our top sponsor Nap Nanny donates new Nap Nanny's to CWL for LM babies in need. Nap Nanny's are a special needs bed which keep baby at a 30 degree angle making it a must have for floppy larynx babies with GERD, obstructive sleep apnea and Nissen/NG feeding tubes.There is $30 s&h fee to ship within the USA and $35 fee to ship within Canada. Note: packages may be subject to custom charges at pick up. To read more about how this program has helped so many LM babies...click here.
  please note, we are currently not accepting applications for this program.
  
   
• Chibebe Slumber Pod Donation Program: is a program where Australia based company, Chibebe  donates new slumber pods to LM babies in need.  Slumber Pods are elevated infant beds which you fill with beans to help promote easy breathing. Please note, this program is only available to  LM, TM/BM families located in Australia.

• Formula Assistance Program: is a program where CWL collects infant formula and formula coupons then distributes the items to LM, TM & BM babies in need.
• Formula in need: Nutramigen Lipil, Similac Sensitive, Enfamil A.R.,Gerber Gentle Plus, Enfamil Lipil and Similac Advance.
• All formula must be unopened and within 3 months of it's expiration date.
• CWL accepts ANY well known brand formula---powder or liquid.
• Formula recipients: CWL covers all shipping costs. This program is only available in the USA and Canada.

• Ready to Rescue: Ready to Rescue is a program in which CWL offers free CPR and first aid training classes and education for parents, families and caregivers of LM babies. This program is available  in New Jersey, USA.

• Breastfeeding Support Program: this program offers gentle, non judgmental, support, advice and education for mothers wanting/trying to breastfeeding a LM baby. To contact a CWL Breastfeeding Consultant please click here.
  
  
• Moms Supporting Moms Program: this program offers mothers the opportunity to talk privately with other LM, TM/BM mothers via Email. All mothers listed are volunteers of CWL and have agreed to the CWL Volunteer Agreement.
  
  
  
  Mother's available for contact:
  
  
  Jaime Lyidc, Lydic06@verizon.net
   
  In September 29 2010 my daughter Elyanna was born this should have been one of the most happiest times in my life however it turned out to be the worst day of  my life my daughter came out blue not breathing and days after would sound  like she had a cold i fought with her doctor for two months before i finally went and had my daughter seen by an ent on my own the next day at 5:30 she was having surgery.... I remember sitting in children's hospital of Pittsburgh feeling so alone scared to death that my baby in pacu wasn't going to make it and i never want another mother of an lm baby to feel like i did that day
  
  
  

  Karina Castro, castrok@me.com

  My first baby was born 5 months ago with LM.  She was diagnosed at 1 week old.  She cried when they were prepping her to bring her to my hospital room and turned blue.  At first, they thought it was "Breath Holding Spells," but they called in an ENT and he diganosed her with a mild case of LM and a little reflux.
  
  Brittany Edwards,  BRATBABY915@YAHOO.COM
   I DONT WANT OTHER LM PARENTS TO FEEL ALONE. I ALSO WANT TO HELP AND SUPPORT OTHER PARENTS SO THEY DON'T HAVE TO FEEL LIKE THEY "GO AT IT ALONE".
  
     

To apply your child for ANY of these programs 

please Email Stephanie at CopingWithLM@yahoo.com