Our mission is to provide support, strength, and education for families coping with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia.

Stephanie Hueston

Founder and Executive Director

hi@copingwithlm.org

Stephanie founded Coping With LM in 2010 shortly after her daughter had surgery (a supraglottoplasty) to help treat life-threatening laryngomalacia. For the last decade, Stephanie has volunteered her time, passion, and heart for the cause.

In 2017, Stephanie co-wrote the first ever Malacia e-Book with Dr. Prasad Thottam D.O, FAAP and Dr. Suzanne Forman, D.O. 

In addition to being a licensed cosmetologist and certified aromatherapist, Stephanie has studied Nonprofit Management at Brookdale Community College and Nonprofit Financial Stewardship at Harvard Kennedy School. 

Edie Hueston

Board Member

Tarah Barreras

Board Member & World Leader

cwltarahflxtx@gmail.com

Daniel Paden

Board Member & Treasurer

cwlfundraising@gmail.com

Christine Amaro

Board Member & World Leader

cwlchristinenj@gmail.com

Info Coming Soon

an all-volunteer 501 (c) 3 nonprofit organization

  © Coping With Laryngomalacia, Inc. 2019 All rights reserved.

Coping With Laryngomalcia is a Bronze Participant for Guide Star