Our mission is to provide support, strength, and education for families coping with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia.

Stephanie Hueston

Founder and Executive Director


Stephanie founded Coping With LM in 2010 shortly after her daughter had surgery (a supraglottoplasty) to help treat life-threatening laryngomalacia. For the last decade, Stephanie has volunteered her time, passion, and heart for the cause.

In 2017, Stephanie co-wrote the first ever Malacia e-Book with Dr. Prasad Thottam D.O, FAAP and Dr. Suzanne Forman, D.O. 

In addition to being a licensed cosmetologist and certified aromatherapist, Stephanie has studied Nonprofit Management at Brookdale Community College and Nonprofit Financial Stewardship at Harvard Kennedy School. 

Edie Hueston

Board Member

Tarah Barreras

Board Member & World Leader


Daniel Paden

Board Member & Treasurer


Christine Amaro

Board Member & World Leader


Info Coming Soon

an all-volunteer 501 (c) 3 nonprofit organization

Coping With Laryngomalcia is a Bronze Participant for Guide Star

  © Coping With Laryngomalacia, Inc. 2020 All rights reserved.

55 Leonardoville Road Second Floor Belford, NJ 07718

Donations: PO Box 313 Port Monmouth, NJ 07758