Frequently asked questions

RARE Science has initiated the RARE Bear program, a grassroots community-driven outreach for kids with rare disease. Community volunteers create one-of-a-kind teddy bears for one-of-a-kind “rare” kids.

RARE Science, Inc. and Coping With Laryngomalacia, Inc. partnered in October of 2019.

RARE Science gives RARE Bears at no cost to approved children. As a 501 (c) 3 nonprofit organization, every dollar makes a difference and family and friends may donate (https://www.rarescience.org/donate/)$5 to cover shipping costs.

Yes, the RARE Bear Program is available worldwide.(https://www.rarescience.org/rare-bears-around-the-world/)

Coping With LM's RARE Bear Program is open to children with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia.

Children who have already benefited from Coping With LM's Breathe Easy Care Package Program, Chibebe Snuggle Pod Program, and Project Pajamas may benefit from the RARE Bear Program.

RARE Science goes through applications once per month from January through November.RARE Science does not contact families individually regarding the status of their application.

RARE Science ships RARE Bears once per month from January through November.

No, RARE Science handles all the applications and RARE Bear shipments.

Caregivers may apply their airway warrior for a RARE Bear here.(https://rarescience.org/copingwithlm) Members of Caregiver Support (https://www.facebook.com/groups/CWLCaregiverSupport/)on Facebook may apply by clicking the pinned post or searching RARE Bear in the group.

RARE Science ships bears in polymailer/padded envelope via USPS.

You can contact RARE Science directly here.(https://www.rarescience.org/contact-us/)