top of page

RARE Bear Program at Coping With LM

This program has been paused, please check back soon for an update. 

  • What is the RARE Bear Program?
    RARE Science has initiated the RARE Bear program, a grassroots community-driven outreach for kids with rare disease. Community volunteers create one-of-a-kind teddy bears for one-of-a-kind “rare” kids.
  • When did RARE Science and Coping With LM partner?
    RARE Science, Inc. and Coping With Laryngomalacia, Inc. partnered in October of 2019.
  • How much does a RARE Bear cost?
    RARE Science gives RARE Bears at no cost to approved children. As a 501 (c) 3 nonprofit organization, every dollar makes a difference and family and friends may donate $5 to cover shipping costs.
  • Is the RARE Bear Program available worldwide?
    Yes, the RARE Bear Program is available worldwide.
  • Who is eligible for a RARE Bear?
    Coping With LM's RARE Bear Program is open to children with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia.
  • What if my child already received a care package?
    Children who have already benefited from Coping With LM's Breathe Easy Care Package Program, Chibebe Snuggle Pod Program, and Project Pajamas may benefit from the RARE Bear Program.
  • How will I know if my child was approved for a RARE Bear?
    RARE Science goes through applications once per month from January through November.RARE Science does not contact families individually regarding the status of their application.
  • When does RARE Science send out RARE Bears?
    RARE Science ships RARE Bears once per month from January through November.
  • Does Coping With LM approve the applications?
    No, RARE Science handles all the applications and RARE Bear shipments.
  • How do I apply my child for a RARE Bear?
    Caregivers may apply their airway warrior for a RARE Bear here. Members of Caregiver Support on Facebook may apply by clicking the pinned post or searching RARE Bear in the group.
  • How will my child's RARE Bear be shipped?
    RARE Science ships bears in polymailer/padded envelope via USPS.
  • How can I contact RARE Science?
    You can contact RARE Science directly here.
bottom of page