RARE Bear Program at Coping With LM

Because of the COVID-19 Pandemic, RARE Science, Inc. has temporarily paused this program. Applications submitted after March 26, 2020, will not be processed until the program is reopened. Thank you for understanding!

Frequently asked questions

What is the RARE Bear Program?


RARE Science has initiated the RARE Bear program, a grassroots community-driven outreach for kids with rare disease. Community volunteers create one-of-a-kind teddy bears for one-of-a-kind “rare” kids.




When did RARE Science and Coping With LM partner?


RARE Science, Inc. and Coping With Laryngomalacia, Inc. partnered in October of 2019.




Is the RARE Bear Program available worldwide?


Yes, the RARE Bear Program is available worldwide.




Who is eligible for a RARE Bear?


Coping With LM's RARE Bear Program is open to children with laryngomalacia, tracheomalacia, bronchomalacia, and pharyngomalacia.




What if my child already received a care package?


Children who have already benefited from Coping With LM's Breathe Easy Care Package Program, Chibebe Snuggle Pod Program, and Project Pajamas may benefit from the RARE Bear Program.




How will I know if my child was approved for a RARE Bear?


RARE Science goes through applications once per month from January through November. RARE Science does not contact families individually regarding the status of their application.




When does RARE Science send out RARE Bears?


RARE Science ships RARE Bears once per month from January through November.




How much does a RARE Bear cost?


RARE Science gives RARE Bears at no cost to approved children. As a 501 (c) 3 nonprofit organization, every dollar makes a difference and family and friends may donate $5 to cover shipping costs.




How do I apply my child for a RARE Bear?


Please send your child's first and last name, mailing address, and proof of Malacia to hi@copingwithlm.org for Coping With LM's RARE Bear request link. Approval from Coping With LM can take 2-3 weeks and does not guarantee approval from RARE Science. Members of Caregiver Support on Facebook may apply by clicking the pinned post or searching RARE Bear in the group.




How can I contact RARE Science?


You can contact RARE Science directly here.




Does Coping With LM approve the applications?


No, RARE Science handles all the applications and RARE Bear shipments.




How will my child's RARE Bear be shipped?


RARE Science ships bears in polymailer/padded envelope via USPS.





an all-volunteer 501 (c) 3 nonprofit organization

  © Coping With Laryngomalacia, Inc. 2019 All rights reserved.

Coping With Laryngomalcia is a Bronze Participant for Guide Star