What To Ask Your Child's Neurologist

A list of suggested questions to ask your child's Neurologist.

 

While we are still uncertain the exact cause of the disorder, the most common theory describes laryngomalacia as a delay in neurological function and tone of the laryngeal structures above the vocal cords. (source)

 

Learn more:

When It's More Than Noisy Breathing

 

Laryngomalacia: Disease Presentation, Spectrum, and Management

 

  • Do you believe genetic testing should be done? If yes, for which genetic conditions/disorders?
     

  • Do you suspect CHARGE Association, Pierre Robin Sequence, 22q11 Microdeletion Syndrome (DiGeorge syndrome) or Chiari Malformation? 
     

  • Do you suspect a seizure disorder or Panayiotopoulos Syndrome?
    If yes, when should I call 911?
     

  • Do you suspect Hydrocephalus or Ventriculomegaly?  
     

  • Do you suspect my child has Hypotonia, a developmental delay, Cerebral Palsy, Dysphagia or Microcephaly? 
     

  • If Central Sleep Apnea (CSA) is present: what is the cause, treatment (CPAP, BPAP, Adaptive servo-ventilation and/or supplemental oxygen) and prognosis? 

  • Do you suggest any of the following tests? If no, why not?

                 Sleep Study with EEG

                 Brain CT Scan

                 48+ Hour Video EEG

                 Sleep Deprived EEG

                 An Early intervention Evaluation

                 Brain MRI/MRV/MRA

  • How can I get in touch with you after office hours?
     

  • Are any specialist (pulmonologist, cardiologist, gastro) follow ups needed?​​
     

  • What hospital are you affiliated with?​

  •  What is your Emergency Appointment Policy?
    Can my baby be seen the same day I call?

    Can you please forward your diagnosis and summary to my baby’s Pediatrician and Ear, Nose & Throat doctor?

 

I would also like a copy for my own records as well as my child's medical portal log-in information.

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